"What do you actually do?"
That's a question people ask me on a regular basis. Because I don't fit into a standard pigeonhole and sometimes that's difficult.
I like to tackle different projects, but always with an impact on people's lives:
Substantive when it comes to research, creative when it comes to information or teaching materials, but also strategic when applying for grants. This makes no two working days the same, which makes me driven and motivated to bring projects to a successful conclusion.
Read more about examples of my projects below.
Educational package: Skin at school
For the patient organization "Skin The Netherlands" I developed a teaching package about the skin and skin disorders for elementary school (8-12 years old).
For this project we worked together with dermatologists, nursing specialists, teachers, an educational expert and patient representatives.
Articles about skin conditions
For the Dutch magazine "Heel de huid" I write a quarterly article about a skin condition. For this, I interview a patients and a healthcare professional.
For example, I wrote about experiences with hidradenitis suppurativa, necrotizing faciitis and hailey-hailey disease. I also wrote about eczema and diagnosing it on dark skin and about sports with the skin condition ichthyosis.
The journal can be accessed online for free (in Dutch).
Patient association for ichthyosis
For the Association for Ichthyosis Networks, I carried out several projects.
I was chief editor of the glossy 'Itchy' (see image), I developed patient leaflets and did research together with Nursing students from Inholland University of Applied Sciences in The Netherlands. This was about quality of life with ichthyosis, aging with ichthyosis, palmoplantar keratoderma and X-linked ichthyosis.
"Children rarely come across someone who has similar skin to them and this can leave them feeling very isolated and different to their friends. Having a storybook where the main character has ichthyosis, just like them, can be extremely beneficial in helping children not feel so alone."
Mandy Aldwin-Easton, Director Ichthyosis Support Group (UK)
"Children with skin problems often think, 'I'm the only one.' But when you talk about it, it turns out that 4/5 children still have some problems with their skin."
Monique Kamphuis, elementary school teacher about the programme Skin at school.
What can I do for you?
I use my experience as a researcher, teacher and mother of children with additional care needs to improve the quality of care.
Every day, healthcare professionals do their best to diagnose and treat patients as well as possible.
But in everyday life, there may be a need for more information, professional guidance and/or sharing experiences with other patients or loved ones.
If you have a chronic skin condition, you may have to deal with feelings of shame and loneliness, and you may even be bullied.
With my background, I therefore work on various projects in the field of health and well-being to improve the quality of life of (vulnerable) people.
Would you like to work with me?
If you would like to collaborate with me, or explore a project, please get in touch! I'll see what I can do for you with no obligation.